Saturday, January 12, 2008

report from this moring:
~ NOTE for the record i awoke this morning LATE- (9:00am)in seroius pain,,crying pain,,untill i took the meds,, i woke up with such RA and after alot of ibuprofen-darvon coffee and tramadol and klonipin,,and 420,and 2-3 hours i could then move about.
HERES whats killin' me,,first of all my feet have been really getting it,,NOTE:need to take pics.
they r changing-they seem to ALWAYS hurt no matter what,
NEXT its my spine,,i feel the RA has moved down a knotch or two,,and it always there-looking to kill me,,my own spine for godsake" killing me-dead",,,i have always complained about RA in my spine, but it was higher up back then ,,and now its moved down- just lovely
THE only way to get past it, is to load up with pain-aids-darvon-heating pad-tramadol- whew,,its been bad,,i want a cortisone shot in my back -if i could find a doctor to do it,,at least i'D get 2-3 months of relief .....its late, im up with a gut ache- im real tired cuz i took more painaids this PM,,,ive napped today,its so good to sleep...
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i found these pics of our heater we had to Replace cuz when the power boosted up ,,it blew some of our things-including our efffing HEATER, omg - .,,,most expense storm,,,,




<-me&E

Friday, January 11, 2008




things i neeed to remember
#1. gorephobia to my shrink,,god,,i get so afraid to leave this house,,whats wrong with me huh?
#2.spliting up my daily dose of prednisone,,,wires me into the night,,not good.. so i take 10 at say about 6am then 10 at noonish.
#3.Chemtrails the other day...i took pictures this time,because,they were THICK and so effing many of um,, i think this coralates somehow with my illness RA and alllergies as well- i get sick when they do this







Thursday, January 10, 2008




= looks like im

feel in'

pretty good huh.,,,???

it lasted for 4 days and i took advantage,,pushing myself over the limit everyday,,iused painaids to sleep and get thru the day...BUT it all feel apart yesterday,when my hands were swollen and i could not walk,,and GOD...my spine HURTS wheeww...i had to break out the "oxy" or i was gonna cry,,all ios well,, i just awoke from 2 days(yesterdy and today) of sleeping hardcore,,i have some kind of alergy thing too,m,my eyes are just bleeding tears and i have had a runny nose fordays now,, i have small cits o n my hands that look infected and hurt like little effing things,,i got so beat up from the cleaning andstraighting out the basement,,,,i wanted to vaccuim every floor in the house and i did!=now im payin 4 it. and its cold out again


heres me now,,,wrecked ... and no energy- ug!

Friday, January 04, 2008






we r GLUED to CNN and watching all this UNfold,,like its a superbowl,,dallas vs. denver,,hell,,,,i really dont know any thing about football,,,
but we r up cheering and going ON! = like some kind of superbowl freaks of politics(loving every minuet of it too haha) go wolf blitzer!


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ive been to MORTON and have not written about my experience there:
we got there early=COLD as shit out too... which makes me so RA'd- i got to see a doctor from Africa then went to NY for studies and moved here to volunteer for a term at this clinic,,he was a MIRACLE- LOVED HIM -kell did too.......
we were so effing empressed with the protical - the human factor - the compasion from the employees and MOST OF ALL,,,the path to HELP and cheap meds.
the doctor said he has had many patients with rheumatoid,,he said all we wanted to know,,,he wants me off of prednisone in a year,,,slowly because it will lead to weak bones in the long run,,he said im ONLY 46 and willl live until at least 80,,,so we need t save my bones NOW and get going on therapy,,i have weak lower from no strenght,,remember my blogs about how i cant sit on my own god given ass??? because i have deteriorated so bad in my hips and feet too.... i fell Good about it,,i gotta go
back in ONE month to see him - i dont mind..i also have been given the plan to wean off of pred,.,.,so that GREAT! he siad he could tell i have been oin predawhile,,see it on my face,,,awwwww,,,but thans ok - i can loose it

Thursday, January 03, 2008




i love this picture of feeding the hipo in bronxzoo- 1920 somthing
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<-pic from tulsa freezing icestorm dec.2007

its thrusday- its cold as @*!# and it affects me in all ways (most uncomfortable would be frozen numb feet) i havent been taking pics lately due to the cold air..it really slows me down to a snails pace and i think i get so tired because im bundeled up all day moving around,,,it weighs alot,,these warm clothes takes all my energy....it wears me out to walk around with all these clothes and a coat on. i will be so glad when spring gets here.....burrrrrrrrrrrrrrrrrrrrrrrrr


temp is 28degrees and feels like 16 due to the moist air.....


god i hate winter with RA...they dont go together.


no wonder they all move to the southwest.....
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wrote that this morning,.,im up from my nap,,im moving alittle bit better,,,more sleep always does me good- only way to get RA undercontrol, but OMG the guilt of being able to sleep during wrking hours is so weird,an & unproductive./.its still freezing out,,,/ i have to wear gloves to type and walk around with a blankie wraped,,thermostate reads 70-73- and its still cold in here.